John Libbey Eurotext

Hépato-Gastro & Oncologie Digestive


Development of the first disability index for inflammatory bowel diseases: why and how? Volume 18, supplement 5, Septembre 2011


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CHU de Nancy, service d’hépatogastroentérologie, allée du Morvan, 54511 Vandœuvre-lès-Nancy, France

Over the past two decades, attention has been focused on the ability of inflammatory bowel diseases (IBD) to alter patients’ quality of life. Disability usually refers to an individual's inability to perform a task successfully. Data about disability are objective descriptions that differ from subjective appraisals such as quality of life. For instance, difficulties in walking (disability) may be in sharp contrast to how the individual feels about this difficulty (quality of life). IBD influences physical, psychological and social dimensions of life. Similarly to rheumatoid arthritis and multiple sclerosis, developing a specific instrument capable of evaluating disability in IBD is a prerequisite to undertaking clinical trials aimed at identifying therapies capable of changing their clinical course. The first disability index for IBD based on the International Classification of Functioning, Disability and Health (ICF) of the WHO will be soon available.