Sciences sociales et santé


Le VIH au long cours : voilements et dévoilements à l’épreuve du temps Volume 41, numéro 3, Septembre 2023

* Sociologue, doctorante à l’Université de Paris, CERLIS, 45 rue des Saints-Pères, 75006 Paris
** Sociologue, maîtresse de conférences à l’Université de Paris, CERMES3, 45 rue des Saints-Pères, 75006 Paris.
*** Praticien hospitalier, COREVIH IDF Nord, 46 rue Henri Huchard, 75018 Paris.
**** Praticienne hospitalière, COREVIH IDF Nord, 46 rue Henri Huchard, 75018 Paris.
***** Technicienne d’étude clinique, COREVIH IDF Nord, 46 rue Henri Huchard, 75018 Paris.
****** Coordinatrice administrative, COREVIH, IDF Nord, 46 rue Henri Huchard, 75018 Paris.

This article presents a sociological analysis of the experience of people living with HIV, aged 60 and over, who have migrated, focusing on their management of information about their diagnosis. It is based on a qualitative survey with 23 people living in Paris and its suburbs.

The management of information is not limited to deliberate and punctual choices between “saying” and “not saying”: the practices of concealing and disclosing the diagnosis include tenuous and intermediate situations, which are embedded in relational and material contexts, entangled in social relationships and shaped by the local moral economies surrounding HIV infection.

This research reveals our survey reveals the sharp gap that can exist between the major medical advances and the inertia of negative representations. In the tension between normalisation and stigmatisation, people living with HIV maintain a strong control over information, despite the long time, banalization and intransmissibility of the infection. However, advancing age, modifying expectations, particularly residential ones, and raising the perspective of mobilising family support, moves the lines of information control and highlights discrete transformations in the attitude to HIV infection.