John Libbey Eurotext

Gériatrie et Psychologie Neuropsychiatrie du Vieillissement

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« Forum Passerelle »: an opportunity for caregivers to meet the professionals of service and support in Alzheimer's disease and related diseases. Volume 19, issue 1, Mars 2021

Figures

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Authors
1 Université de Lyon, EA-7425 HESPER, Health Services and Performance Research, Lyon, France
2 Service pharmaceutique, Hôpital des Charpennes, Institut du vieillissement, Hospices Civils de Lyon, France
3 Université de Lyon 1, Lyon, France
4 Cellule régionale pour l’éducation en santé dans les troubles neurocognitifs, Institut du vieillissement, Hospices Civils de Lyon, France
5 Hôpital des Charpennes, Institut du vieillissement, Hospices Civils de Lyon, France
6 Inserm U1028 ; CNRS UMR5292, Centre de Recherche de Neuroscience de Lyon, Brain Dynamics and Cognition Team, Lyon, France
7 Soins et santé, Rillieux-la-Pape, France
8 Unité Transversale d’Education Thérapeutique de Lyon, Hospices Civils de Lyon, France
* Tirés à part

The aim of this study was to assess 1) the satisfaction of caregivers of patients with Alzheimer's disease or related diseases regarding a new collective support intervention called “Forum Passerelle”(Gateway forum), and 2) to assess the impact of “Forum Passerelle” on the implementation of services and support for patients or caregivers. This is an observational study carried out on the basis of 3 “Forum Passerelle” (between October 2018 and February 2020). Following each “Forum Passerelle”, the caregivers’ satisfaction was assessed and the number of services and support was counted. In total, 78 caregivers took part in these first “Forum passerelle”. The satisfaction survey showed that 98% of caregivers were satisfied with the topics covered by “Forum Passerelle”. The forum fully met the expectations of 61% of caregivers and partially for 39%. Among the caregivers contacted 3 or 6 months after the forum, 68% had set up a new service/support (85 new services/support for the sick relatives and 32 for caregivers) and 59% declared that these changes had taken place thanks to the “Forum Passerelle”. To conclude, the first 3 “Forums Passerelle” were received very favorably by caregivers and contributed to the implementation of new services to optimize home support for the sick relative.