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How does the law about End-of-life apply to child with polyhandicap ?


Médecine thérapeutique / Pédiatrie. Volume 15, Number 1, 34-7, Janvier-Février-Mars 2012, Dossier

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Author(s) : Thierry Billette de Villemeur, Catherine Brisse, Alexandra Afenjar, Arnaud Isapof, Eric Humbertclaude, Sophie Mathieu

Summary : The law « Leonetti » clarified and framed the decision and the implementation of the care and the treatments administered to the patient at the end-of-life. In child with polyhandicap, care and treatments do not intend to cure him, but to improve his/her quality of life and to fight against the over-handicaps : these are indeed palliative care, even if they go on over very long periods, often several years. For child with polyhandicap, End-of-life care is set up when his/her state deteriorates and it can include limitation or stop of certain treatments. Leonetti law helps to clarify what differentiates palliative and End-of-life care for child with polyhandicap, as shown here in a peculiar clinical situation.

Keywords : Polyhandicap, Profound Intellectual and Multiple Disabilities (PIMD), child, palliative care, End-of-life

 

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