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 Printable version |
Facing with the child in palliative care |
Médecine thérapeutique / Pédiatrie. Volume 15, Number 1, 5-10, Janvier-Février-Mars 2012, Dossier
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 Résumé
Texte intégral
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Author(s) : Sophie Bartoli, Etienne Seigneur |
Summary : To take care of children or teenagers in palliative care is a complex task which requires to continue treating while having given up curing. This situation generates in the parents, as in the caregivers, intense emotional movements, not linear and not frozen, that it is necessary to recognize and attend. The difficulty is to preserve a living and authentic relationship, flexible and dynamic, as well as adapted quality cares which do not estimate the length of the life of the child or the teenager in palliative care. Even if it seems to have been not much thought in the specific frame of paediatrics, the law of April 22
nd, 2005, called « Leonetti law » offers a legal framework to practises often already old. Where the unbearable one, namely the death of a child, attacks bonds permanently, it appears essential that the plan of end of lifetime, which is a project of life, is reflected and carried by the whole team. Finally ethical reflection and questioning maintained at work around the paediatric palliative care take part in the prevention of potential temptations which can constitute unreasonable obstinacy or, in contrario, euthanasia. |
Keywords : child, palliative care, death, ethic |
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